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Wilmington, DE

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Age Suitability None Specified
Category Other

An Evening for Eliza

Thursday, Dec 19, 2013 6:30p

DDR 22nd Annual Christmas Party
presents:
An Evening For Eliza

Eliza is a 4 year old girl afflicted with SanFilippo Syndrome, a rare genetic terminal disease, which will quickly steal her childhood and her life. Life expectancy is early teens. The syndrome is degenerative and often children are brain damaged by age 6, lose speech, and decline further from there. There are no treatments and no cure….BUT….a gene therapy clinical trial is coming at the end of 2014, if funding is supplied. This gene
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