An Evening for Eliza
DDR 22nd Annual Christmas Party
An Evening For Eliza
Eliza is a 4 year old girl afflicted with SanFilippo Syndrome, a rare genetic terminal disease, which will quickly steal her childhood and her life. Life expectancy is early teens. The syndrome is degenerative and often children are brain damaged by age 6, lose speech, and decline further from there. There are no treatments and no cure….BUT….a gene therapy clinical trial is coming at the end of 2014, if funding is supplied. This gene… Show more
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815 Justison St.
Wilmington, DE 19801